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Privacy

This notice gives you a clear explanation about how the University of East Anglia (and any third parties we work with) collect and use your personal information and explains:

  • Who we are
  • What information we collect about you
  • How and when we collect this information
  • Why we collect and how we use this information
  • Who we may share your information with
  • How long we keep your information
  • Your rights
  • How to contact us
  • Changes to this privacy notice
  • Who we are

    The University of East Anglia (UEA) is a public research university based in Norwich, England. UEA is a data processor for your information, which means we process information on behalf of the research Sponsor, University of Exeter (as part of the CareCoach research project).

    We do our utmost to protect your privacy. We have security systems and procedures to protect information from unauthorised disclosure, misuse, or destruction.

    For the CareCoach programme, the University of Exeter is the registered Data Controller.

    What information we collect about you

    During your involvement with UEA via the CareCoach platform (care-coach.co.uk), the following personal information is collected, used, and stored securely by us:

    • Your first name and surname
    • Your email address
    • How and when we collect this information

      UEA will collect information about you during your participation in the CareCoach research programme.

      Why we collect and how we use this information

      We will only use your personal data for the purposes for which it was collected, unless we consider that we need to use it for another related reason and that reason is compatible with the original purpose. If we need to use your data for an unrelated purpose, we will seek your consent to use it for that new purpose.

      UEA collects personal information from you to perform its public tasks as a provider of higher education and research and uses it:

      • A part of the CareCoach research programme.
      • Your name and email address are used to create a login for you on care-coach.co.uk.
      • Sensitive Information

        We do not collect sensitive information via the care-coach.co.uk. If this information is included in your messages to your coach, they will only be viewed by your coach and not by other persons.

        Access to and the sharing of this kind of ‘special category’ personal information has extra protection. Where we do use your sensitive personal information, we will either have obtained your explicit consent or there will be a substantial public interest reason with a basis in law.

        The reasons for using this information include to prevent or detect unlawful acts, to protect the public, or to address safeguarding issues. It may also include:

        • The monitoring of disability data to facilitate access to buildings
        • Information about race and ethnicity for monitoring our responsibilities under the Equality Act 2010
        • Medical information required to provide learning support
        • Employment, social security, and social protection purposes (such as public health issues, accidents, or occupational health, etc.)
        • Who we may share your information with

          For the CareCoach programme UEA may share your information with CareCoach partners where there is a legitimate or legal reason to do so or because you asked us to.

          The external organisations include:

          • The University of Exeter
          • Ilionx Group B.V (who host the CareCoach platform)
          • Maastricht University, more specifically the Faculty of Health, Medicine, and Life Sciences and its School for Mental Health and Neuroscience
          • Your coach based at an NHS or other health, social care or charity organisation, who will be able to view your information
          • We will not normally disclose your personal information to other external organisations without your consent unless it is in the event of a medical emergency.

            Where UEA shares your information with any organisation based outside the UK, appropriate safeguards will be in place to protect your personal information.

            How long we keep your information

            We will keep your personal information only as long as it is necessary for the purpose it was collected and in accordance with UEA’s records retention schedule. This means that, in normal circumstances, your full data collected via care-coach.co.uk will be kept for 5 years after the CareCoach research programme ends.

            UEA will always store your personal information safely and will never disclose it to any other person unlawfully.

            Your rights

            Under data protection law, you have rights including:

            • Right of access – you can ask us for copies of your personal information (this is known as a Data Subject Access Request or SAR).
            • Right to rectification – you can ask us to rectify personal information you think is inaccurate.
            • Right to erasure - you can ask us to erase your personal information.
            • Right to restrict processing – you can ask us to restrict how we use your personal information.
            • Right to object to processing – you can object to us using your personal information.
            • Right to data portability – you can ask that we transfer the personal information you gave us to another organisation, or to you.
            • Please note, these rights are not absolute and the requirement for UEA to comply with your request depends on the purpose for our processing. You don’t need to pay any charge for exercising these rights. If you make a request, we have one month to respond to you.

              How to contact us

              You can ask the research team about how we handle your data, please contact carecoach@uea.ac.uk or call 07599 926354.

              Please contact UEA’s Data Protection Officer at dataprotection@uea.ac.uk if you would like any further information; if you wish to exercise any of your data rights; if you believe your personal information has been breached; or if you have any other concerns about how your personal information is being used by UEA.

              If you are still not happy after you have spoken to us, you can contact the ICO:

              • Online - Contact us - public | ICO
              • By phone - ICO Helpline number: 0303 123 1113
              • Changes to this privacy notice

                We keep our privacy notices under regular review.

                This privacy notice was last updated on 19th December 2024.