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CareCoach helps maintain a healthy balance in daily life

This online resource is offered as part of the CareCoach study based at the University of East Anglia. It is designed for anyone who has caring responsibilities for a person living with dementia. It provides online learning combined with coaching support via email, video-call and/or phone. The coach provides support throughout the programme.

For more information, please contact the study team by email at carecoach@uea.ac.uk.

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Alzheimer Centrum LimburgMaastricht UMCMaastricht Universityilionx

Who is this course for?

CareCoach is a self-management support package designed specifically for you, as you are supporting a person living with dementia at home. We use the word ‘carer’ as an umbrella term to include all unpaid carers, most of whom are spouses, sons, daughters, or other family members, but may also include friends and neighbours.

The package is intended to provide you with knowledge, skills, and support to navigate your individual circumstances as you care for your person living with dementia. CareCoach has been co-developed with carers and dementia experienced staff.

How to take part in the CareCoach Study?

This resource is being offered through the CareCoach study based at the University of East Anglia. For more information please the study team at carecoach@uea.ac.uk

William

caregiver

The great thing about the modules is that you can always apply them to your own situation. That’s why the course is so effective. Every module gives you specific actions you can take. I’ve found that the course has given me structure. Also, you can do the modules at any time that suits you.

Lisa

partner of a spouse with memory problems

No one chooses to be a full-time caregiver. It just happens to you and it raises so many questions. This course teaches you to take a different approach to problems, and the caregivers in the videos understand what you’re going through. I’m very grateful for their practical tips.

Els

care manager

By focusing on a specific problem or situation, other problems are discussed that are not normally discussed. It creates a new routine for the coach and the client. I have noticed that it enriches the relationship you have with people.

Frans

partner of a spouse with dementia

Early on after my spouse was diagnosed with FTD, I followed the training as a caregiver. It helped me to stay on my feet, I was able to stay in control during the most difficult periods of the disease process. My wife was able to live at home longer because of it!

Partner

of someone with frontotemporal dementia

I am happy with the feedback and compliments I received from my coach. The feeling that I can handle the care for my loved one has increased because of it.

Partner

of someone with frontotemporal dementia

It is still a horrible disease, but the modules have given me tools to help me move on. I am very happy that I came across this program and was able to get started with it right away, even when I was not ready to accept other help yet.

Mr. L

partner of a spouse with dementia

After the diagnosis comes a period of new uncertainties. How will this continue? How can I still relax myself? This course has given me the necessary support at the right time, in a way that suits my needs and possibilities.

1

Select the modules you want to do

Together with your coach, you’ll select the right modules for you. Each module focuses on a different theme. Choose the modules that you need most or that you would like to know more about.

2

Introduction video

Each module begins with an introduction video featuring people in similar situations to you, talking about their experiences and offering useful tips for other people caring for someone living with dementia.

3

Background

After watching the video, you can read more information and tips about a module’s theme.

4

Tailored to your personal situation

Then you are invited to do some writing and thinking.

5

Achieving your goals, step by step

Finally, each module ends with a step-by-step plan that shows you, one step at a time, how to apply the knowledge and skills from CareCoach to your caring journey.

6

You’re not in this alone

Your personal coach will help you as you work through the course and give you feedback on the assignments you do.